综合一区欧美国产,99国产麻豆免费精品,九九精品黄色录像,亚洲激情青青草,久久亚洲熟妇熟,中文字幕av在线播放,国产一区二区卡,九九久久国产精品,久久精品视频免费

CULTURE

CULTURE

They are us

By Cheng Yuezhu????|????China Daily????|???? Updated: 2019-11-08 08:28

Share - WeChat
Members of Dancing Wheels, a dance company in the United States, perform at the 2019 Luminous Festival in Beijing.[Photo provided to China Daily]

A new arts festival seeks to raise awareness about people living with rare diseases and disabilities, Cheng Yuezhu reports.

A diverse ensemble of different ages, genders and degrees of physical mobility tell similar stories through the play, Rare Hug.

"I look different from everyone else. I sit in a wheelchair, measuring the floor with my hands. But I'm just like everyone else. I need to go to work in order to do what I like," a member of the group says onstage, during a recent performance of the stage production that seeks to highlight the lives of people with rare diseases.

"While I look just like everyone else, I am a myasthenia gravis patient," says another member.

The neuromuscular disease leads to muscle weakness. The symptoms include drooping eyelids, a tendency to fall, and a lack of balance and physical strength.

"It can be life-threatening," the person adds.

Each story is about a real experience. The play's performers are either patients with rare diseases or are from families in which other members have them.

Rare Hug reveals such struggles. It features performers from the Illness Challenge Foundation, a Chinese nonprofit in Beijing.

The play was staged as part of the 2019 Luminous Festival held in Beijing from Oct 13 to 20, as the first edition of an annual event to promote inclusive arts.

"At this year's Rare Disease Day event (in February), we talked about creating a play to express ourselves through art so that the public can truly feel that patients with rare diseases actually live among them and to help them understand our life experiences through stories," says Pan Longfei, one of the actors and a patient with Kallmann syndrome, a condition characterized by delayed or absent puberty and an impaired sense of smell.

A dozen patients with rare diseases volunteered to perform in the play. Directors Chen Meiping and Liang Wanyun helped turn their life experiences into a stage production.

1 2 Next   >>|

Registration Number: 130349

Mobile

English

中文
Desktop
Copyright 1994-. All rights reserved. The content (including but not limited to text, photo, multimedia information, etc) published in this site belongs to China Daily Information Co(CDIC).Without written authorization from CDIC, such content shall not be republished or used in any form.
石屏县| 太湖县| 孙吴县| 黑河市| 平谷区| 锡林郭勒盟| 长葛市| 筠连县| 精河县| 靖西县| 湘乡市| 奉节县| 化州市| 察隅县| 金平| 健康| 定兴县| 博野县| 霸州市| 南皮县| 司法| 宜川县| 金溪县| 柳林县| 张掖市| 铁岭县| 桃源县| 泸定县| 茌平县| 南昌市| 固镇县| 永泰县| 靖安县| 江安县| 平武县| 宁波市| 芦山县| 江陵县| 灵丘县| 岚皋县| 尼玛县|